I have come to realize that there are two types of people in this world:
- Those that accept what doctors tell them about vitiligo, that there’s no “cure” (or nothing that can be done), and who have decided to accept their vitiligo and live their life.
- Those that feel there is always a workaround, who don’t believe everything the doctors tell them, and who do not want to just sit back and do nothing.
I recently joined a Facebook vitiligo group in hopes of finding people who think like me – people who want to take charge of their health and try to stop and/or reverse their vitiligo.
But what I found was a lot of hostility, and people that DO NOT like hearing that there is something they can do about their vitiligo.
Honestly, I was taken aback by it…but I had to remind myself that we are all different. We all have different upbringing, different thought processes, different environments, different personalities, etc.
All of these things shape our opinions about life and how to live.
I can respect that.
But it’s frustrating because I need support, too. I don’t have all of the answers about vitiligo. I am navigating my way through this pretty much by myself.
What really bugs me is the fact that people keep stating that there are worse diseases out there, things that people die from.
So I guess that means I should just do nothing and allow myself to become disfigured from this disorder?
Is it wrong that I suspect there is something wrong inside of my body and that I would like to fix it before any other issues develop?
Is it wrong that I want to prevent my body from continuing to attack itself, and possibly develop more autoimmune diseases?
I know that vitiligo is not deadly and that there are many, many other terrible diseases out there that people are dying from every day, and I honestly do feel terrible about that.
But I shouldn’t have to feel like I am being vain if I want to fight this, and neither should you.
I will not just sit back and do nothing. I will do something to help myself.
If you’re tired of being told that it could be worse, and that you should just live with it, please head over and like my Facebook page. I would love for you to join me as I try to piece together this vitiligo puzzle.
I have lots of ideas swirling around in my head and would love to be able to bounce them off of people who think like I do.
I would love to hear your thoughts and opinions about getting healthy and the things you are doing to help yourself heal.
See you there!